Education, Research and Events

“Real-World Data from a Single Institution on Nirogacestat for Refractory, Symptomatic Desmoid Tumor: Dosing, Adverse Event Management and Symptom Improvement from Medical Record Review.”

with Andrea Penrose, BA

“Analysis of Changes in T2-Weighted Signal Intensity and Tumor Volume and Exposure-Response in the Ringside Phase 2 Study of Varegacestat in Patients with Desmoid Tumors.”

with Mrinal Gounder, MD

“To see the early effect of Sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis.”

with Sameer Rastogi, MD

“Treatment discontinuation in desmoid tumors: Factors associated with better outcomes after sorafenib discontinuation.”

with Nicole Hardy, MS, Medical Student

Desmoid Tumor Patient Panel on Lived Experience

“The Association of Pain With Function for Adult Patients With Desmoid Tumor: Findings From the Desmoid Tumor Research Foundation Natural History Study.”

with Kelly Mercier, PhD