The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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Join us for the 2023 RFA 5K & Fun Run

Dr. Jesse Boehm Discusses Importance of Rare Cancer Tissue Donation Through Pattern.org

Dealing with Desmoids: Mental Health Tools for the Desmoid Patient – Session #6 – Survivor’s Guilt and Toxic Positivity

Dealing with Desmoids: Mental Health Tools for the Desmoid Patient- Session #7: Body Image & Identity

“Patient Registry and Natural History Study Retakes & Updates” 

with Dr. Kelly Mercier

“DTRF Patient Registry & Natural History Study 101” 

with Dr. Kelly Mercier

DTRF Presents: “An Integrative Approach to Health and Well-Being” 

with desmoid tumor patient Jessica Clark, RN, BSN

LIVE: “One Desmoid Tumor Patient’s Journey”

with #DesmoidSurvivor Jackie Kucskar (2022)

Sachin Sarcoma Society Video

Zoey’s Story

2022 RFA Ceremony

“FAP and Mental Health” 

with Dr. Karen Hurley, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3

“FAP-Associated Desmoids and Surgery” 

with Dr. Joshua Sommavilla, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3