Join us in Philadelphia from Sept. 25-27th for our "Together We Will" Weekend: - Register today!

The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

Filter by:

“Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)”

Special Guest: Gregory Cote, MD, PhD

2026 Patient Education Webinar

Spread the Word: “How Desmoid Tumors are Classified and Why It Matters for Patients”

Special Guests: Mrinal Gounder, MD, Ashley Williams, LCSW, CTTP-II, Narasimhan Agaram, MBBS

2026 Patient Education Webinar

“Spread the Word” Live Virtual Event

Special Guest: Morgan B.

2026 Rare Disease Day

Facebook/Instagram Live Recording

“Pregnancy and Desmoid Tumors”

with special guests from Dana-Farber Cancer Institute and The Brigham and Women's Hospital

2025 Patient Educational Webinar

“Modeling desmoid tumors in Xenopus: Improvement and expansion of the CRISPR-based pipeline and use of lightsheet microscopy for 3D-spatial mapping of the tumor microenvironment.”

with Kris Vleminckx, PhD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“Genomic, epigenomic, and transcriptomic inter- and intra-tumor heterogeneity in desmoid tumors.”

with Joanna Przybyl, PhD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop