This summer, the DTRF submitted a proposal to the CDC for a new ICD-10 code specific to the diagnosis of desmoid tumor, including subcategories for tumor location. We believe a specific desmoid tumor code will improve research as well as patient care.

After review by the CDC, the proposal was set to be presented to the CDC’s ICD-10 committee on September 14th.

At the meeting, Dr. Breelyn Wilky, a DTRF Scientific Advisory Board member, gave a 10-minute presentation about desmoid tumors, followed by the outline of the proposed code, and then answered questions. The entire meeting is available to view on the CDC website: Day 1, with Dr. Wilky’s presentation starting at time code 5:53:22.

No decisions are made at this meeting. We want to thank Dr. Wilky for her time and commitment to this effort!

For the latest information, please visit our page on the ICD-10 Code effort.