"Dealing With Desmoids" - The Desmoid Tumor Research Foundation

Dealing with Desmoids: Mental Health Tools for the Desmoid Patient

Join Ashley Williams, a Licensed Clinical Social Worker (LCSW) and desmoid tumor patient, as she presents “Dealing with Desmoids: Mental Health Tools for the Desmoid Patient”, an educational program series hosted by The DTRF.


“Coping with Loneliness, Fear & Anxiety”
June 14th at 7pm ET 

The desmoid patient experience can be characterized by loneliness, fear, and anxiety. Due to the rarity of the diagnosis, there are challenges and uncertainties that can leave one feeling isolated and scared. In this session, we will discuss the impact of loneliness, fear and anxiety on the patient experience, and identify strategies for coping with these feelings when they arise.



The impact of a desmoid diagnosis can reach far beyond just the physical challenges. It can also pose serious mental and emotional hurdles as well. Our mental health series will dive into the unique experience of a desmoid patient and provide mental health education, tools, and strategies for coping with the emotional challenges of this diagnosis. All “Dealing with Desmoids” programs will be recorded and posted on this page. 


Session 2: Grief, Loss and Post-Traumatic Growth

Session 1: Trauma Resilience