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  • Desmoid Tumor Awareness Month

    Featured

    Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.

  • Swing For A Cure – St. Louis

    The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!

  • Faith Over Fear Fundraiser

    West Catholic High School 801 Bristol Ave NW, Grand Rapids, MI, United States

    If you are in the Grand Rapids area, come join Gabe and his local high school as they raise awareness and funds for the DTRF! Free Throw Contest @ Half-time. T-shirts will be available for purchase at the games. All proceeds from the event will go directly to the DTRF. If you can't attend this […]

  • WMK Classic: Lacrosse Tournament Fundraiser

    1st Annual WMK Classic (presented by WYL) Charity 3-on-3 Small Ball Lacrosse Tournament benefitting the DTRF in Winchester, Massachusetts. Contact Chris Froeb for more information: chrisfroeb@gmail.com

  • Athina’s Ride

    Penticton B.C.

    Athina's Ride is a cycling event that starts with training rides in the spring and culminates on July 13/14th weekend. You can either complete the ride on your own, with family & friends or join our ride led by Athina Merckx on the Saturday July 13th in Penticton, British Columbia. Come join Athina and support […]

  • Desmoid Tumor Awareness Month: Webinar with Dr. Dale Shepard

    On Thursday, September 5th at 4pm ET, join us for a webinar featuring Dr. Dale Shepard from the Cleveland Clinic. He will explain how impactful the testing of biomarkers is in the diagnosis and treatment of desmoid tumors. He will also touch on genetic testing in relation to CTNNB1 mutations. Register Here Dale R. Shepard […]

  • Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell

    Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 11th at 3pm ET, join us for a Facebook Live featuring Megan Barrell, Desmoid Tumor Patient Advocate. The conversation will focus on Megan's lived experience and patient journey as a young adult with a desmoid tumor.  

  • Golf For A Cure

    Zeeland, MI

    $100 - Per Player includes 18 holes w/cart, reception, drink tickets, raffles All proceeds go to support research for a cure through the Desmoid Tumor Research Foundation Location: Crestview Golf Course Learn more by downloading the event guide here!