The Desmoid Tumor Research Foundation
Together we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston, TX on September 20-22, 2024! Events include the DTRF International Research Workshop for medical and industry professionals, along with DTRF […]
The DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments Live questions/answers and discussions related to the scientific talks Group discussions focusing on gaps in […]
Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared […]
The 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. This year, the desmoid tumor patient community and supporters will come […]
The Ortwerth family invites you to the 6th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 25th at 3pm ET, join us for a Facebook Live featuring Amanda MacKinnon, caregiver of a desmoid tumor patient. The conversation will focus on Amanda's caregiver journey.
Register today for the upcoming educational webinar hosted by the DTRF with special guests Bernd Kasper, MD, PhD, Professor, University of Heidelberg, Mannheim University Medical Center in Germany and Jean-Emmanuel Kurtz, MD, PhD, Professor of Medical Oncology from Strasbourg University- Hôpitaux Universitaires de Strasbourg in France. During this webinar, Dr. Kurtz will talk about how […]
The JoeStrong Volleyball Tournament is back again! Scan the QR Code or click on the event website link below to register for this fun annual event in Austin, TX.
During this virtual event, Dr. Laurie McKenzie will share how you can obtain a fertility assessment before and after treatment for desmoid tumors. She will share fertility preservation options available for both men and women. Also, she'll provide some additional reliable resources in terms of fertility preservation options and reproductive considerations. This will be a […]
The Pink in the Rink fundraiser will include games played by the Orchard Lake Hockey Association followed by three games featuring the Orchard Lake St. Mary’s (OLSM) hockey teams vs their rival – Brother Rice (BR), culminating with the Varsity game at 7:00pm. Throughout the day there will be basket raffles, 50/50 raffles as well […]
In honor of Rare Disease Day this year, join us LIVE on Facebook on February 27th, at 6 PM ET for a conversation with desmoid tumor patient, Amy Beitz! You don't want to miss Amy share her desmoid tumor story. To join the event and ask questions, visit our Facebook Live Event link in our […]
Running for Answers (RFA) is going VIRTUAL! Even though there won't be an in-person run or walk this year, help the DTRF carry on the RFA tradition and make a bigger impact by launching a virtual fundraiser today! Running for Answers was founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009 and quickly became DTRF's annual fundraising […]
