• DTAM Kickoff Event: Connecting Our Community

    Join the DTRF as we officially launch Desmoid Tumor Awareness Month (DTAM) with a virtual gathering centered on connection and shared experiences! Designed with input from DTRF Ambassadors, this patient-centered […]

  • Desmoid Defenders 5K Run/Walk

    Queeny Park Saint Louis, MO, United States

    Run for Awareness. Run for Research. Run for Hope. September is Desmoid Tumor Awareness Month, and the Desmoid Defenders 5K is an opportunity to bring our community together to support patients […]

  • 2026 DTRF “Together We Will” Weekend

    Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your […]