The Desmoid Tumor Research Foundation

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Desmoid Tumor Awareness Month

Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.

DTRF Int’l Research Workshop (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the […]

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DTRF Together We Will Weekend

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.

DTRF Patient Meeting (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and […]

Desmoid Tumor Awareness Month: Webinar with Dr. Dale Shepard

On Thursday, September 5th at 4pm ET, join us for a webinar featuring Dr. Dale Shepard from the Cleveland Clinic. He will explain how impactful the testing of biomarkers is in the diagnosis and treatment of desmoid tumors. He will also touch on genetic testing in relation to CTNNB1 mutations. Register Here Dale R. Shepard […]

Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell

Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 11th at 3pm ET, join us for a Facebook Live featuring Megan Barrell, Desmoid Tumor Patient Advocate. The conversation will focus on Megan's lived experience and patient journey as a young adult with a desmoid tumor.  

2024 Together We Will Weekend

Marriott 6580 Fannin Street, Houston, United States

Together we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston, TX on September 20-22, 2024! Events include the DTRF International Research Workshop for medical and industry professionals, along with DTRF […]

2024 International Research Workshop

Marriott 6580 Fannin Street, Houston, United States

The DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments Live questions/answers and discussions related to the scientific talks Group discussions focusing on gaps in […]

2024 Annual Patient Meeting

Marriott 6580 Fannin Street, Houston, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared […]

2024 RFA Walk

Houston Zoo 6200 Hermann Park Drive, Houston, TX, United States

The 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. This year, the desmoid tumor patient community and supporters will come […]