In honor of Sarcoma Awareness Month, the Desmoid Tumor Research Foundation (DTRF) invites you to a new story-sharing event featuring Amanda is an artist and keynote speaker who is both an Ewing’s sarcoma survivor and currently living with a desmoid tumor.

This special virtual event will offer a comforting and supportive space to hear Amanda’s story and amplify the patient voice within the desmoid tumor community. Chaney Pope, the DTRF’s Communications Manager, will facilitate the live interview, followed by a 15-minute Q&A where attendees can connect with Amanda.

We encourage you to submit your questions during registration. While we may not be able to answer every question live, we will select as many as possible to help guide this meaningful community conversation.

Register today!

Please note: Patients and caregivers are selected for story-sharing opportunities based on their willingness to share their desmoid tumor experience and their availability for upcoming DTRF events, programs, or communications. These opportunities may include participating in a DTRF team Lunch & Learn, being featured on our social channels, or sharing their story in other community-centered ways.

If you would like to connect with the DTRF team and be considered for future story-sharing opportunities, please contact info@dtrf.org.