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  • Swing for a Cure – St. Louis

    The Ortwerth family invites you to the 6th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.

  • Desmoid Tumor Awareness Month: Facebook Live with Amanda MacKinnon

    Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 25th at 3pm ET, join us for a Facebook Live featuring Amanda MacKinnon, caregiver of a desmoid tumor patient. The conversation will focus on Amanda's caregiver journey.

  • Educational Webinar: “Cryoablation: What We Know and Don’t Know”

    Register today for the upcoming educational webinar hosted by the DTRF with special guests Bernd Kasper, MD, PhD, Professor, University of Heidelberg, Mannheim University Medical Center in Germany and Jean-Emmanuel Kurtz, MD, PhD, Professor of Medical Oncology from Strasbourg University- Hôpitaux Universitaires de Strasbourg in France. During this webinar, Dr. Kurtz will talk about how […]

  • El Tour de Tuscon: Cycling Event

    Tucson, AZ

    Support the DTRF at the El Tour de Tucson by registering for the race and picking the DTRF as your charity. We hope you participate in this year’s event on November 23, 2024.  You won’t be alone given that annually over 9,000 cyclists participate in the renowned and popular event! Register Here

  • 3rd Annual Pink in the Rink

    The Pink in the Rink fundraiser will include games played by the Orchard Lake Hockey Association followed by three games featuring the Orchard Lake St. Mary’s (OLSM) hockey teams vs their rival – Brother Rice (BR), culminating with the Varsity game at 7:00pm.  Throughout the day there will be basket raffles, 50/50 raffles as well […]

  • 2025 RFA Virtual

    Running for Answers (RFA) is going VIRTUAL! Even though there won't be an in-person run or walk this year, help the DTRF carry on the RFA tradition and make a bigger impact by launching a virtual fundraiser today! Running for Answers was founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009 and quickly became DTRF's annual fundraising […]

  • Lakeland Trails 100km Ultra

    Support Nick Plant on his DTRF fundraising journey. A Note from Nick:  This year, I’ve decided to take on the Lakeland Trails 100km Ultra run in support of the Desmoid Tumour Research Foundation (DTRF). This charity does incredible work, they aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and […]

  • Golf For A Cure

    $100 - Per Player includes 18 holes with golf cart, reception, drink tickets & raffles All proceeds of this event go to support research for a cure through the Desmoid Tumor Research Foundation! Location: Crestview Golf Course - Zeeland, Michigan Learn more by downloading the event guide here!

  • Swing for a Cure – St. Louis

    The Ortwerth family invites you to the 7th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.

  • Rock For A Cure

    TRIBE is organizing the first annual “Rock for a Cure” concert featuring Batterhead and Tom Fills for an amazing charity near and dear to our hearts - Desmoid Tumor Research Foundation. DTRF is funding grants for groundbreaking research into why desmoid tumors spontaneously regress--without any treatment--at a rate nearly 10 times as frequently as with […]

  • Okanagan Graveller Cycling Event

    The Okanagan Graveller cycling event benefits the Desmoid Tumour Foundation of Canada (DFC), a long-standing partner of DTRF. Participate or register for the event by clicking visiting the registration page. The DTRF and DFC are currently collaborating and co-funding two multi-year research grants focused on spontaneous regression in desmoid tumors to help advance shared scientific […]