The Desmoid Tumor Research Foundation
CanÕt make it to the RFA 5K& Fun Run? The RFA Virtual Challenge provides an opportunity to fundraise virtually for desmoid tumor research. We encourage you to become an RFA ÒChallengerÓ and choose your own unique way to work towards a fundraising goal. This virtual campaign culminates in a LIVE online ceremony days after the […]
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
The RFA 5K & Fun Run, founded by desmoid tumor patient Sera Snyder in 2010, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against […]
The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!
If you are in the Grand Rapids area, come join Gabe and his local high school as they raise awareness and funds for the DTRF! Free Throw Contest @ Half-time. T-shirts will be available for purchase at the games. All proceeds from the event will go directly to the DTRF. If you can't attend this […]
1st Annual WMK Classic (presented by WYL) Charity 3-on-3 Small Ball Lacrosse Tournament benefitting the DTRF in Winchester, Massachusetts. Contact Chris Froeb for more information: chrisfroeb@gmail.com
Athina's Ride is a cycling event that starts with training rides in the spring and culminates on July 13/14th weekend. You can either complete the ride on your own, with family & friends or join our ride led by Athina Merckx on the Saturday July 13th in Penticton, British Columbia. Come join Athina and support […]
