The Desmoid Tumor Research Foundation

DTRF

DTRF

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DTRF Int’l Research Workshop (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the […]

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DTRF Together We Will Weekend

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.

DTRF Patient Meeting (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and […]

DTRF Community Networking Event (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in […]

RFA 5K & Fun Fun

Fairmount Park 4231 Avenue of the Republic, Philadelphia, PA, United States

The RFA 5K & Fun Run, founded by desmoid tumor patient Sera Snyder in 2010, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against […]

DTRF Informational Zoom Webinar for Adolescents & Young Adults

Join the DTRF for the first night of the two-part special event: "Times Are A-Changin': Heading into Young Adulthood with a Desmoid Tumor." This event is exclusively designed for young adults with desmoid tumors (ages 18-39). Part One: Informational Zoom Webinar Have you been the youngest person in the oncology waiting room? Learn tips and […]

DTRF “Speed Desmoidian-ing” Virtual Networking Event for Adolescents & Young Adults

Join the DTRF for the second night of the two-part event: "Times Are A-Changin': Heading into Young Adulthood with a Desmoid Tumor." Tune in for a special "Speed Desmoidian-ing" virtual networking event just for young adults with desmoid tumors facilitated by two of their peers. Includes: 1-on-1 Breakout Rooms and Group Discussion to connect with […]

2024 Together We Will Weekend

Marriott 6580 Fannin Street, Houston, United States

Together we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston, TX on September 20-22, 2024! Events include the DTRF International Research Workshop for medical and industry professionals, along with DTRF […]

2024 International Research Workshop

Marriott 6580 Fannin Street, Houston, United States

The DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments Live questions/answers and discussions related to the scientific talks Group discussions focusing on gaps in […]

2024 Annual Patient Meeting

Marriott 6580 Fannin Street, Houston, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared […]

2024 RFA Walk

Houston Zoo 6200 Hermann Park Drive, Houston, TX, United States

The 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. This year, the desmoid tumor patient community and supporters will come […]