External Conference Posters and Abstracts

2024 | CTOS Annual Meeting

Nirogacestat Treatment in Adult Patients with Desmoid Tumors: Long-Term Efficacy and Safety From the Phase 3 DeFi Trial

Author: Ravin Ratan, MD, MEd, University of Texas, MD Anderson Cancer Center, Department of Sarcoma Medical Oncology, Division of Cancer Medicine, Houston, TX, USA

Co-Author: Bernd Kasper, MD, PhD, University of Heidelberg; Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit, Mannheim, Germany

Co-Author: Patrick Schöffski, Prof Dr, Department of General Medical Oncology, University Hospitals Leuven, Leuven Cancer Institute, KU Leuven, Leuven, Belgium

Co-Author: Winette van der Graaf, MD, PhD, Department of Medical Oncology, Netherlands Cancer Institute, Antoni van Leeuwenhoek, Amsterdam, Netherlands; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, Rotterdam, Netherlands

Co-Author: Noah Federman, MD, Departments of Pediatrics and Orthopedics, UCLA Jonsson Comprehensive Cancer Center, UCLA David Geffen School of Medicine, Los Angeles, CA, USA

Co-Author: Nam Quoc Bui, MD, Division of Oncology, Department of Medicine, Stanford University, Stanford, CA, USA

Co-Author: Allison Lim, PharmD, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Shengfan Zhou, MS, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Ana B. Oton, MD, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Yucheng Chu, MS, Sumptuous Data Sciences, Monmouth Junction, NJ, USA

Co-Author: Brad Tumminello, PharmD, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Mrinal Gounder, MD, Memorial Sloan Kettering Cancer Center; Weill Cornell Medical College, New York, NY, USA

2024 | CTOS Annual Meeting

Efficacy of Nirogacestat in Patients with Desmoid Tumors and Poor Prognostic Factors: Patient-Reported Outcomes, Progression-Free Survival, and Objective Response Rate in the Phase 3 DeFi Trial

Author: Bruno Vincenzi, MD, Prof, Policlinico Universitario Campus Bio-Medico, Rome, Italy

Co-Author: Nam Quoc Bui, MD, Stanford University, Stanford, CA, USA

Co-Author: Palma Dileo, MD, University College London Hospitals NHS Foundation Trust, London, United Kingdom

Co-Author: Noah Federman, MD, UCLA David Geffen School of Medicine, Los Angeles, CA, USA

Co-Author: Richard F. Riedel, MD, Duke Cancer Institute, Duke University, Durham, NC, USA

Co-Author: Brian A. Van Tine, MD, PhD, Washington University, Saint Louis, MO, USA

Co-Author: Shengfan Zhou, MS, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Timothy Bell, MHA, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Yucheng Chu, MS, Sumptuous Data Sciences, Monmouth Junction, NJ, USA

Co-Author: Allison Lim, PharmD, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Ana B. Oton, MD, SpringWorks Therapeutics, Inc, Stamford, CT, USA

Co-Author: Bernd Kasper, MD, PhD, University of Heidelberg, Mannheim University Medical Center, Mannheim, Germany

2024 | CTOS Annual Meeting

The Effects of Ultrasound-Guided Histotripsy on Soft Tissue Sarcoma Desmoid Tumor Cohort Creation and Characteristics in the Veterans Affairs (VA) National Database

Author: Sarah E. Lindsay, MD, OHSU Department of Orthopaedics & Rehabilitation

Co-Author: Cecelia Madison, MS, Portland VA Medical Center Operative Care Division

Co-Author: Dipam Doshi, PharmD, SpringWorks Therapeutics Inc.

Co-Author: Susan Scott, MSN, SpringWorks Therapeutics Inc.

Co-Author: Tim Bell, MHA, SpringWorks Therapeutics Inc.

Co-Author: Sunny Cho, PharmD, SpringWorks Therapeutics Inc.

Co-Author: Duncan Ramsey MD, MS, OHSU Department of Orthopaedics & Rehabilitation

Co-Author: Yee-Cheen Doung, MD, OHSU Department of Orthopaedics & Rehabilitation

Co-Author: Kenneth R. Gundle, MD, OHSU Department of Orthopaedics & Rehabilitation, Portland VA Medical Center Operative Care Division

2024 | CTOS Annual Meeting

The Effects of Ultrasound-Guided Histotripsy on Soft Tissue Sarcoma

Author: Emma Kenna, Cancer Biology, University of Michigan Medical School, Ann Arbor, MI

Co-Author: Lexi-Ann F. Golden, Cancer Biology; University of Michigan Medical School, Ann Arbor, MI

Co-Author: James Messina, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Ryan Hubbard, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Kyle Perry, MD, Department of Pathology; University of Michigan Medicine, Ann Arbor, MI

Co-Author: Amanda Shafer, Department of Surgery; University of Michigan Medicine, Ann Arbor, MI

Co-Author: Ashley Cornett, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Brynn Kackzkofsky, Department of Surgery; University of Michigan Medicine, Ann Arbor, MI

Co-Author: Jodi Wilkowski, Department of Surgery; University of Michigan Medicine, Ann Arbor, MI

Co-Author: Steven Soliman, MD, Department of Radiology, University of Michigan Medicine, Ann Arbor, MI

Co-Author: Gunjan Malhotra, MD, Department of Radiology, University of Michigan Medicine, Ann Arbor, MI

Co-Author: Geoffrey Siegel, MD, Department of Orthopaedic Surgery, University of Michigan Medicine, Ann Arbor, MI

Co-Author: Jonathan Sukovich, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Timothy Hall, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Zhen Xu, Department of Biomedical Engineering; University of Michigan, Ann Arbor, MI

Co-Author: Christina V. Angeles, MD, Cancer Biology; University of Michigan Medical School, Department of Surgery; University of Michigan Medicine, Ann Arbor, MI

2024 | CTOS Annual Meeting

Pegylated liposomal doxorubicin in symptomatic desmoid tumor

Author: Kjetil Boye, Department of Oncology, Oslo University Hospital, Oslo, Norway

Co-Author: Annette Torød Skeie, Department of Radiology, Oslo University Hospital, Oslo, Norway

Co-Author: Marthe Rosvoll Kobbeltvedt, Department of Oncology, Oslo University Hospital, Oslo, Norway

Co-Author: Lisbeth Hårklau, Department of Gastroenterological Surgery, Oslo University Hospital, Oslo, Norway

Co-Author: Anthony Burton Mariathasan, Department of Gastroenterological Surgery, Oslo University Hospital, Oslo, Norway

Co-Author: Gia Hoang Nam Nguyen, Department of Orthopedic Surgery, Oslo University Hospital, Oslo, Norway

Co-Author: Ingvild Lobmaie, Department of Pathology, Oslo University Hospital, Oslo, Norway

Co-Author: Tord Hompland, Department of Radiation Biology, Oslo University Hospital, Oslo, Norway

Co-Author: Ivar Hompland, Department of Oncology, Oslo University Hospital, Oslo, Norway

2024 | CTOS Annual Meeting

TRANSCRIPTOMIC ANALYSIS OF DESMOID TUMOR RESPONSE TO NIROGACESTAT: NOVEL MECHANISMS OF RESISTANCE?

Author: Alvarez J, Department of Radiation Oncology, Sidney Kimmel Cancer Center, Thomas Jefferson University

Co-Author: Basu Mallick A, Department of Radiation Oncology, Sidney Kimmel Cancer Center, Thomas Jefferson University

Co-Author: Blomain ES, Department of Radiation Oncology, Sidney Kimmel Cancer Center, Thomas Jefferson University

2024 | CTOS Annual Meeting

Targeting the O-GlcNAcase Transferase in Leiomyosarcoma and Desmoid-type Fibromatosis

Author: Richard Miallot, Cancer Research Program, The Research Institute of the McGill University Health Centre, Department of Surgery, McGill University, Montreal, QC, Canada

Co-Author: Sandip Das, Georgia Institute of Technology, Atlanta, GA, USA

Co-Author: Raphael Pollock, The Ohio State University College of Medicine, Columbus, OH, USA

Co-Author: Jonathan Fletcher, Pathology Department, Brigham And Women's Hospital, Boston, MA, USA

Co-Author: Joanna Przybyl, Cancer Research Program, The Research Institute of the McGill University Health Centre, Department of Surgery, McGill University, Montreal, QC, Canada

2024 | CTOS Annual Meeting

MULTI-OMIC AND MULTI-REGION PROFILING OF DESMOID TUMORS REVEALS INTRA- AND INTER-TUMOR HETEROGENEITY

Author: Chelsea De Bellis, Department of Surgery, McGill University, Montreal, QC, Canada

Co-Author: Sujay Vennam, Department of Pathology, Stanford University School of Medicine, Stanford, CA, USA

Co-Author: Christopher Eeles, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada

Co-Author: Justin Cates, PathGroup Laboratories, Nashville, TN, USA

Co-Author: Thomas Stricker, One Oncology, Nashville TN, USA

Co-Author: Kristen Ganjoo, Department of Medicine, Division of Medical Oncology, Stanford University, Stanford, CA, USA

Co-Author: Benjamin Haibe-Kains, Princess Margaret Cancer Centre, University Health Network, Department of Medical Biophysics, University of Toronto, Toronto, Canada & Cancer Research Program, The Research Institute of the McGill University Health Centre, Montreal, QC, Canada

Co-Author: Joanna Przybyl, Department of Surgery, McGill University, Cancer Research Program, The Research Institute of the McGill University Health Centre, Montreal, QC, Canada

2024 | CTOS Annual Meeting

Descriptive Evaluation of Patients With Desmoid Tumor and Co-Occurring Somatic Mutations of CTNNB1 and APC in the Phase 3 DeFi Trial

Author: Bernd Kasper, MD, PhD, Sarcoma Unit, Mannheim University Medical Center, University of Heidelberg, Mannheim, Germany

Co-Author: Noah Federman, MD, Departments of Pediatrics and Orthopaedic Surgery, David Geffen School of Medicine, University of California, Los Angeles, CA, USA

Co-Author: Peter Reichardt, MD, PhD, Helios Hospital Berlin-Buch, Berlin, Germany

Co-Author: Richard F. Riedel, MD, Duke Cancer Institute, Duke University Medical Center, Durham, NC, USA

Co-Author: Allison Lim, PharmD, SpringWorks Therapeutics, Inc., Stamford, CT, USA

Co-Author: Vincent Amoruccio, PhD, SpringWorks Therapeutics, Inc., Stamford, CT, USA

Co-Author: Brian A. Van Tine, MD, PhD, Siteman Cancer Center, Washington University, School of Medicine, St. Louis, MO, USA

2024 | CTOS Annual Meeting

Utilization of Mental Health and Supportive Care Resources Among Patients with Desmoid Tumors

Author: Victoria Wytiaz, MD, University of Michigan, Department of Oncology

Co-Author: Patrick Gaulier, MSW, University of Michigan Department of Social Work

Co-Author: Scott Schuetze, MD, University of Michigan, Department of Oncology

Co-Author: Christina Angeles, MD, University of Michigan, Department of Surgery

Co-Author: Amanda Fox, PA, University of Michigan, Department of Oncology

Co-Author: Laurie Zyczynski, PA, University of Michigan, Department of Oncology

Co-Author: Rashmi Chugh, MD, University of Michigan, Department of Oncology

2024 | ESMO Sarcoma and Rare Cancers Congress

45P “The Patient Voices: Revealing the Challenges Faced by Persons with Desmoid Tumors in a Middle-Income Country”

Author: Carolina Maria de Menezes Chaves, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil

Co-Author: Livia Prudente Barbieri MD, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil

Co-Author: Bruna Bianca Lopes David MD, epartment of Medicine, Division of Oncology, Brazilian National Cancer Institute, Rio De Janeiro, RJ, Brazil: Oncoclinicas Group. Rio de Janeiro. RJ, Brasil

Co-Author: Celso Abdon Lopes de Mello MD, PhD, Sarcoma Reference Center, A.C. Camargo Cancer Center, São Paulo, SP. Brazil

Co-Author: Fernando Campos MD, Sarcoma Reference Center, A.C. Camargo Cancer Center, São Paulo, SP. Brazil

Co-Author: Georgia Garofalo Mounssef, Desmoid Tumor Brazilian Association - Desmoide Brasil, São Paulo, SP, Brazil

Co-Author: Philippos Apolinario Costa MD, Department of Medicine, Division of Oncology, Yale School of Medicine

2024 | ESMO Sarcoma and Rare Cancers Congress

Impact of Nirogacestat on Patient-Reported Outcomes in Adults with Desmoid Tumor with a Best Overall Response of Stable Disease: Post Hoc Analysis fromThe DeFi Study

Author: Silvia Stacchiotti, et al (Complete author information is listed on presentation.)

2024 | ESMO Sarcoma and Rare Cancers Congress

Treatment Landscape for Desmoid Tumors: Desmoid Tumor Research Foundation Natural History Study

Author: Kelly Mercier, PhD - Desmoid Tumor Research Foundation, Duke University

Co-Author: Shengfan Zhou, MS - SpringWorks Therapeutics, Inc.

Co-Author: Ana Oton, MD - SpringWorks Therapeutics, Inc.

Co-Author: Timothy Bell, MHA - SpringWorks Therapeutics, Inc.

Co-Author: Lynne Hernandez, BA - Desmoid Tumor Research Foundation

Presenter & Co-Author: Amanda Lucas, BS - Desmoid Tumor Research Foundation

2024 | ESMO Sarcoma and Rare Cancers Congress

Impact of Desmoid Tumors on Patients’ Quality of Life: Desmoid Tumor Research Foundation Natural History Study

Author: Kelly Mercier, PhD - Desmoid Tumor Research Foundation, Duke University

Co-Author: Shengfan Zhou, MS - SpringWorks Therapeutics, Inc.

Co-Author: Brad Tumminello, PharmD - SpringWorks Therapeutics, Inc.

Co-Author: Timothy Bell, MHA - SpringWorks Therapeutics, Inc.

Co-Author: Lynne Hernandez, BA - Desmoid Tumor Research Foundation

Presenter & Co-Author: Amanda Lucas, BS - Desmoid Tumor Research Foundation

2023 | CTOS Annual Meeting

INVESTIGATING THE ROLE OF LIQUID BIOPSY IN DESMOID FIBROMATOSIS DURING ACTIVE SURVEILLANCE

Author: Laura Bergamaschi, MSc (she/her/hers) – Fondazione IRCCS Istituto Nazionale dei Tumori, Milano

Co-Author: Marta Zorza, n/a – Fondazione IRCCS Istituto Nazionale dei Tumori

Co-Author: Francesca Rini, n/a – Fondazione IRCCS Istituto Nazionale dei Tumori

Co-Author: Federica Perrone – Fondazione IRCCS Istituto Nazionale dei Tumori

Co-Author: licia Rivoltini, MD, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori

Co-Author: Alessandro Gronchi, MD, FSSO (he/him/his) – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Co-Author: Sandro Pasquali, MD, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori

Co-Author: Viviana Vallacchi, PhD – Fondazione IRCCS Istituto Nazionale dei Tumori

Presenter: Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

2023 | CTOS Annual Meeting

PDGFRβ AND C-ABL ACTIVATION ASSOCIATE WITH OUTCOME AND RESPONSE TO SORAFENIB IN DESMOID PATIENTS TREATED ON THE PHASE III ALLIANCE A091105 TRIAL

Co-Author: Jia Hu, PhD – Memorial Sloan Kettering Cancer Center

Co-Author: Meera Hameed, MD – Memorial Sloan Kettering Cancer Center

Co-Author: Narasimhan Agaram, MBBS – Memorial Sloan Kettering Cancer Center

Co-Author: Karissa Whiting, MS – Memorial Sloan Kettering Cancer Center

Co-Author: Li-Xuan Qin, PhD (she/her/hers) – Memorial Sloan Kettering Cancer Center

Co-Author: Anthony M. Villano, MD (he/him/his) – Fox Chase Cancer Center

Co-Author: Rachael O’Connor, BS – Memorial Sloan Kettering Cancer Center

Co-Author: Yuliy Rozenberg, PhD – Memorial Sloan Kettering Cancer Center

Co-Author: Sonia Cohen, MD – Memorial Sloan Kettering Cancer Center

Co-Author: Katherine Prendergast, MD – Memorial Sloan Kettering Cancer Center

Co-Author: Richard White, MD – Atrium Health

Co-Author: Mitchell Posner, MD – University of Chicago

Co-Author: Nicholas Socci, PhD – Memorial Sloan Kettering Cancer Center

Co-Author: Samuel Singer, MD, FACS – Memorial Sloan Kettering Cancer Center

Co-Author: Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center

Author: Aimee M. Crago, MD, PhD, FACS (she/her/hers) – Memorial Sloan Kettering Cancer Center

2023 | CTOS Annual Meeting

(P14) PERCUTANEOUS CRYOABLATION OF PROGRESSING EXTRA-ABDOMINAL DESMOID TUMOURS

Andrea Vanzulli, MD – Università degli Studi di Milano

Lucilla V. Sciacqua, MD – Università degli Studi di Milano

Tommaso Cascella, MD – Fondazione IRCCS Istituto Nazionale dei Tumori

Carlo Spreafico, M.D. – Fondazione IRCCS Istituto Nazionale dei Tumori

Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy

Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Carlo Morosi, MD – Department of Radiology, Fondazione IRCSS Istituto Nazionale Tumori, Milan, Italy

2023 | CTOS Annual Meeting

(P219) ELECTIVE DISCONTINUATION OF SORAFENIB TREATMENT IN DESMOID TUMORS: A RETROSPECTIVE ANALYSIS WITH IMPLICATIONS FOR CLINICAL PRACTICE

Nikita Shah, M.D. – Northwestern Memorial Hospital

Ayra Faruqi, MD – Northwestern Medicine

Borislav Alexiev, M.D. – Northwestern Memorial Hospital

John Hayes, M.D. – Northwestern Memorial Hospital

Susan Abbinanti, M.D. – Northwestern Memorial Hospital

Fahad Faruqi, M.D., M.P.H – Northwestern Medicine

Akhil Chawla, MD – Northwestern Memorial Hospital

Terrance Peabody, M.D. – Northwestern Memorial Hospital

Samer Attar, M.D. – Northwestern Memorial Hospital

Jeff Wayne, M.D. – Northwestern Memorial Hospital

Seth Pollack, MD – Robert H. Lurie Comprehensive Cancer Center of Northwestern University

Pedro Viveiros, MD – Northwestern University

Vinai Gondi, M.D. – Northwestern Memorial Hospital

2023 | CTOS Annual Meeting

(P221) EARLY RESULTS IN NOVEL USE OF CONTRAST-ENHANCED SUSCEPTIBILITY-WEIGHTED IMAGING IN THE ASSESSMENT OF RESPONSE AND PROGRESSION IN DESMOID FIBROMATOSIS: PILOT STUDY IN A SPECIALIZED CANCER INSTITUTION

Raul F. Valenzuela, M.D – MD Anderson Cancer Center

Behrang Amini, M.D, PhD – MD Anderson Cancer Center

Elvis Duran Sierra, PhD – MD Anderson Cancer Center

Mathew Antony, M.D – MD Anderson Cancer center

Colleen Costelloe, M.D – MD Anderson Cancer center

John E. Madewell, M.D – MD Anderson Cancer Center

William A. Murphy, Jr., M.D – M.D Anderson Cancer center

2023 | CTOS Annual Meeting

(P158) SORAFENIB OR ANTHRACYCLINE-BASED CHEMOTHERAPY IN ADULT PATIENTS WITH PROGRESSIVE DESMOID TUMORS

Philippos A. Costa, MD – Yale University

Arshia Arora, MD – University of Miami

Nipat Chuleerarux, MD – University of Miami

Leticia Campoverde, MD – University of Miami

Yanelys Fernandez, MD – University of Miami

Baylee Bakkila, BS, BA – Yale University

Heng Tan, MD – University of Miami

Priscila Barreto coelho, MD – University of Miami

Andrea P. Espejo-Freire, MD – University of Minnesota

Gina Z. D’Amato, MD – Sylvester Comprehensive Cancer Center

Emily Jonczak, MD – Sylvester Comprehensive Cancer Center / University of Miami Hospital and Clinics

Ty Subhawong, MD – University of Miami

Hari Deshpande, MD – Yale University

Kelly Olino, MD – Yale University

Jonathan Trent, MD – University of Miami

2023 | CTOS Annual Meeting

(P342) THE EVALUATION AND OUTCOMES OF MESENTERIC AND INTRA-ABDOMINAL DESMOIDS: A TARPSWG STUDY

Tristan Wild, BMSc – University of Ottawa

Kerianne Boulva, MD – The Centre hospitalier de l’Université de Montréal (CHUM)

Francesco Barretta, PhD – Fondazione IRCCS IStituto Nazionale dei Tumori, Milan, Italy

Kenneth Cardona, MD – Department of Surgery, Winship Cancer Institute, Emory University

Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy

Peter Hohenberger, N/A, n/a – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany

Shintaro Iwata, MD – National Cancer Center Hospital

Rebecca Gladdy, MD, PhD – Mount Sinai Hospital, Sinai Health System, and Princess Margaret Cancer Centre Toronto, ON, Canada Lunenfeld-Tanenbaum Research Institute, Sinai Health System, Toronto, ON, Canada University of Toronto, Toronto, ON

Christina V. Angeles, MD – Department of Surgery, Rogel Cancer Center, University of Michigan

Neha Goel, MD – Miami University

Pawel Sobczuk, MD PhD – Maria Sklodowska-Curie National Research Institute of Oncology

Samuel Ford, MD, PhD – Department of Surgery, University Hospitals Birmingham

Greg Sigler, MD – University of Ottawa

Dan Blazer, III, MD – Duke University

Winan J. van Houdt, MD, PhD, MS – Netherlands Cancer Institute/ Antoni van Leeuwenhoek

Stephanie H. Greco, MD – Fox Chase Cancer Center

Fabian Johnston, MD, MHS – Johns Hopkins

Vittorio Lorenzo Quagliuolo, MD – IRCCS Humanitas Research Hospital

Samuel Aguiar, MD – A.C. Camargo

Elisabetta Pennacchioli, MD – Division of Melanoma, Sarcoma, and Rare Tumor Surgery, European Institute of Oncology

Dagmar Adámková Krákorová, MD, PhD – Masaryk Memorial Cancer Institute Brno, Czech Republic

Sameer Rastogi, DM – Department of medical oncology, Dr BRAIRCH, All India Institute of Medical Sciences

Chandrajit P. Raut, MD, MSc – Brigham and Women’s Hospital, Dana-Farber Cancer Institute, Harvard Medical School, Boston

Hayden Snow, MD – Peter MacCallum Cancer Centre

Palma Dileo, MD – University College Hospital

Guy Lahat, MD – Tel Aviv Sourasky Medical Center

Jos A. van der Hage, MD PhD – Leiden University Medical Center

Attila Kollar, MD – Department of Medical Oncology, University Hospital Bern, Inselspital, Switzerland

Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Carolyn Nessim, MD – Department of Surgery, University of Ottawa

2023 | CTOS Annual Meeting

(P554) FIVE-YEAR OUTCOMES OF A NATIONWIDE PROSPECTIVE CLINICAL TRIAL ON ACTIVE SURVEILLENCE IN PATIENTS WITH NON-INTRAABDOMINAL DESMOID-TYPE FIBROMATOSIS

Stefanie N. Hakkesteegt, MD – Erasmus Medical Center

Anne-Rose W. Schut, MD – Erasmus Medical Center

Milea J.M. Timbergen, MD, PhD – Erasmus Medical Center

Danique L.M. Van Broekhoven, MD, PhD – Erasmus Medical Center

Thijs van Dalen, MD, PhD – Erasmus Medical Center

Winan J. van Houdt, MD, PhD, MS – Netherlands Cancer Institute/ Antoni van Leeuwenhoek

Han Bonenkamp, Dr. – Radboud university medical center

Stefan Sleijfer, MD, PhD – Erasmus Medical Center

Dirk J. Grünhagen, MD, PhD – Erasmus Medical Center

Cornelis Verhoef, MD, PhD – Erasmus Medical Center

2023 | CTOS Annual Meeting

(P549) DOUBLE-BLIND PLACEBO-CONTROLLED TRIAL OF AL102 FOR TREATMENT OF PROGRESSING DESMOID TUMORS: THE RINGSIDE PHASE 3 STUDY DESIGN

Piotr Rutkowski, MD, PhD – Maria Sklodowska-Curie National Research Institute of Oncology in Warsaw, Department of Soft Tissue/Bone Sarcoma and Melanoma

Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center

Robin L. Jones, BSc, MB BS, MRCP, MD – Sarcoma Unit, The Royal Marsden NHS Foundation Trust and Institute of Cancer Research

Jonathan Y. Yovell, MD – Ayala Pharmaceuticals

Gary Gordon, MD, PhD – Ayala Pharmaceuticals

Andres A. Gutierrez, MD, PhD – Ayala Pharmaceuticals

Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center

2023 | CTOS Annual Meeting

(P395) TARGETING CD44-MEDIATED IRON ENDOCYTOSIS IN DESMOID FIBROMATOSIS

Stéphanie Solier, PharmD-PhD – Institut Curie

Olivier Delattre, PhD – Institut Curie

Pierre Gestraud, PhD – Institut Curie

Chloé Quignot, PhD – Institut Curie

Sylvie Bonvalot, MD, PhD – Institut Curie

Dimitri Tzanis, MD, PhD – Institut Curie

Sophie El Zein, MD – Institut Curie

Laetitia Lesage, n/a – Institut Curie

Joshua J Waterfall, PhD – Institut Curie

Raphaël Rodriguez, PhD – Institut Curie

Sarah Watson, MD, PhD – Institut Curie

2023 | CTOS Annual Meeting

(P333) SYSTEMIC TREATMENT IN INTRA-ABDOMINAL DESMOID-TYPE FIBROMATOSIS: A SINGLE INSTITUTION RETROSPECTIVE CASE SERIES ANALYSIS

Ilaria Pellegrini, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Francesca Ligorio, MD – Department of Medical Oncology 1, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Chiara Colombo, MD – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Marco Fiore, MD, FEBS, FACS – Department of Surgery, Sarcoma Service, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Salvatore Provenzano, MD – Mesenchymal and rare cancer Medical Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Carlo Morosi, MD – Department of Radiology, Fondazione IRCSS Istituto Nazionale Tumori, Milan, Italy

Ciriaco Buonomenna, MD – Department of Radiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Marco Vitellaro, MD – Department of Surgery, Hereditary Digestive Tract Tumors Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Paola Collini, MD – Department of Advanced Diagnostics , Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Alessandro Gronchi, MD, FSSO – Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

Paolo Giovanni G. Casali, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy

Elena Palassini, N/A, MD – Department of Medical Oncology 2, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy

2023 | CTOS Annual Meeting

(P241) ASSOCIATION OF ADC VALUES WITH DESMOID TUMOR SHRINKAGE DURING ACTIVE OBSERVATION

Masato Sugawara, MD, PhD – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery

Daiichiro Takahara, M.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery

Chiomi Shirai, M.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surgery

Michiaki Takagi, M.D., Ph.D. – Yamagata University Faculty of Medicine, Department of Orthopaedic Surge

2023 | CTOS Annual Meeting

(P12) MULTIFOCAL AND DISSEMINATED SPORADIC DESMOID TUMOUR OF THE EXTREMITIES: A SPECIAL CHALLENGE

Franka Menge – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany

Peter Hohenberger, N/A, n/a – Sarcoma Unit, Department of Surgery and Mannheim Cancer Center, University Medical Center Mannheim, University of Heidelberg, Mannheim,Germany

Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center

Eva Wardelmann, MD – Institute of Pathology,.University Hospital Muenster

Florian Haller, N/A, n/a – Department of Pathology Friedrich- Alexander- Universität Erlangen-Nürnberg, Erlangen

Jens Jakob, MD – University Medical Center Mannheim, University of Heidelberg

2023 | CTOS Annual Meeting

IMPACT OF NIROGACESTAT ON FUNCTIONAL STATUS IN PATIENTS WITH DESMOID TUMORS: RESULTS FROM THE PHASE 3 DEFI STUDY

Bernd Kasper, MD, PhD – University of Heidelberg, Mannheim University Medical Center

Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center

Ravin Ratan, MD – The University of Texas MD Anderson Cancer Center

Timothy Bell, MHA – SpringWorks Therapeutics, Inc.

Cristina Ivanescu, PhD – IQVIA

James Marcus, PhD – IQVIA

Allison Lim, PharmD – SpringWorks Therapeutics Inc

Sandra Goble, MS – SpringWorks Therapeutics Inc

Sunny Cho, PharmD – SpringWorks Therapeutics Inc

Thierry Alcindor, MS, MSc – McGill University

Winette van der Graaf, Prof. Dr. – Netherlands Cancer Institute/ Antoni van Leeuwenhoek

Patrick Schöffski, MD, MPH – Department of General Medical Oncology, University Hospitals Leuven, and Laboratory of Experimental Oncology, KU Leuven, Leuven Cancer Institute, Leuven, Belgium

Breelyn A. Wilky, MD – University of Colorado Cancer Center charlotte Benson, MBChB, FRCP – The Royal Marsden Hospital

Nam Bui, MD – Stanford University

Rashmi Chugh, MD – University of Michigan Rogel Cancer Center

Shivaani Kummar, MD, FACP – Oregon Health & Science University

Richard F. Riedel, MD – Duke Cancer Institute

First Place Winner in the CTOS poster category “Improving Sarcoma Care Globally”

2023 | CTOS Annual Meeting

(P146) CHARACTERIZING THE PATIENT JOURNEY TO A DIAGNOSIS OF DESMOID TUMOR: DESMOID TUMOR RESEARCH FOUNDATION NATURAL HISTORY STUDY

Shengfan Zhou, MS – SpringWorks Therapeutics Inc.

Amanda Lucas, BS – Desmoid Tumor Research Foundation

Lynne Hernandez, BA – Desmoid Tumor Research Foundation

Timothy Bell, MHA – SpringWorks Therapeutics, Inc.

Mitchell Allen – SpringWorks Therapeutics Inc.

Sandra Goble, MS – SpringWorks Therapeutics Inc.

Kelly Mercier, PhD – Desmoid Tumor Research Foundation