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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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Times Are A-Changin’ Series: Heading into Young Adulthood with a Desmoid Tumor

Facilitator & Patient Advocate: Dakota Fisher-Vance

2024 Patient Education Webinar

LIVE: “Fundraising for Answers”

with DTRF Development Director, Debbie Nathan

LIVE: “One Desmoid Tumor Patient’s Journey”

with #DesmoidWarrior John MacKinnon (2023)

“Active Surveillance as a Desmoid Tumor Treatment”

with Alessandro Gronchi, MD

Recorded at the 2023 DTRF Patient Meeting

“An Update on the DTRF Patient Registry – September 2023”

with Kelly Mercier, PhD

Recorded at the 2023 DTRF Patient Meeting

“Arterial doxorubicin eluting embolization as a desmoid tumor treatment”

with Eldad Elnekave, MD

Recorded at the 2023 DTRF Patient Meeting