Education, Research and Events

“Desmoid fibromatosis management in tertiary care center in India- Lessons learned” 

with Sameer Rastogi, MD, Medical Oncologist, All India Institute of Medical Sciences (2020 DTRF Research Workshop)

“The DTRF Virtual Tumor Board” 

with Aaron Weiss, DO, Associate Professor of Pediatrics, Maine Medical Center (2020 DTRF Research Workshop)

“The DTRF Natural History Study- Sept 2020 Update” 

with Kelly Mercier, PhD, Principal Investigator, DTRF Patient Registry (2020 DTRF Research Workshop)

“AL102, Oral Gamma-Secretase Inhibitor for the Treatment of Patients Living with Desmoid Tumors” 

with Chen Duksin, MD, MBA, Executive Medical Director, Ayala Pharmaceuticals (2020 DTRF Research Workshop)

Dr. Ben Alman of Duke University on DTRF’s 15th Anniversary

Dr. Mrinal Gounder on DTRF’s Patient Advocacy Work in the Sorafenib Trial (Audiogram)