The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Learning about the Clinical Trial Experience” 

with Dr. Rashmi Chugh, University of Michigan, & Jon Fields, a Clinical Trial Participant - DTRF Patient Meeting Webinar #2

“Learning about Compassionate Use” 

with Dr. Ravin Ratan, MD Anderson Cancer Center & Amanda Hoffman, a beneficiary of Expanded Access (aka: Compassionate Use) - DTRF Patient Meeting Webinar #2

“Diagnostic and therapeutic strategies for extra-abdominal desmoid-type fibromatosis: a longitudinal questionnaire survey to specialized centers in Japan” 

with Yoshihiro Nishida, MD, Rehabilitation & Orthopedic Oncology, Nagoya University Graduate School of Medicine (2021 DTRF Research Workshop)

LIVE: “One Desmoid Tumor Patient’s Journey” 

with Christina Kosyla (Sept. 9th, 2021)

LIVE: “What’s in a Name? ‘Cancer’ & Desmoid Tumors” 

with Dr. Raphael Pollock (The Ohio State University) (Sept. 29th, 2021)

“The mechanism of Sorafenib in desmoid-type fibromatosis” 

with Anne-Rose W Schut, MD, PhD candidate, Surgical Oncology, Erasmus Medical Center Cancer Institute (2020 DTRF Research Workshop)