The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Tumor volume and T2 hyperintensity changes from DeFi: a phase 3, randomized, controlled trial of nirogacestat in patients with desmoid tumors”

with Thierry Alcindor, MD, MSc

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

“RINGSIDE Phase 2/3 Trial of AL102 for Treatment of Desmoid Tumors (DT): Phase 2 Results”

with Rashmi Chugh, MD

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

“Activation of c-JUN modulates the transcriptional activity of CD63 serving as a novel target for the treatment of desmoid type fibromatosis”

with Cristabelle De Souza, PhD

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

“New Desmoid Tumor ICD-10-CM Codes”

with Linda Holtzman, MHA, RHIA, CCS, CCS-P, CPC, COC

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

Times Are A-Changin’ Series: Heading into Young Adulthood with a Desmoid Tumor

Facilitator & Patient Advocate: Dakota Fisher-Vance

2024 Patient Education Webinar

LIVE: “Fundraising for Answers”

with DTRF Development Director, Debbie Nathan