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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Treatment discontinuation in desmoid tumors: Factors associated with better outcomes after sorafenib discontinuation.”

with Nicole Hardy, MS, Medical Student

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

Desmoid Tumor Patient Panel on Lived Experience

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“The Association of Pain With Function for Adult Patients With Desmoid Tumor: Findings From the Desmoid Tumor Research Foundation Natural History Study.”

with Kelly Mercier, PhD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“One Desmoid Tumor Patient’s Journey”

Special Guest: Tiffany Braswell

Facebook Live: 2025 Desmoid Tumor Awareness Month

“How does a Multidisciplinary Tumor Board work?”

Featuring Northwestern Medicine

Recorded at the 2025 DTRF Annual Patient Meeting

“Long-Term Nirogacestat Treatment in Adult Patients With Desmoid Tumors: Updated Efficacy and Safety From the DeFi Trial.”

with Bernd Kasper, MD, PhD

Recorded at the 2025 DTRF Annual Patient Meeting