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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Spread the Word” Facebook Live

Special Guest: Amy Beitz

2025 Rare Disease Day

“Reproductive considerations for desmoid tumor patients”

Special Guest: Laurie J. McKenzie, MD

2025 Lunch N' Learn

Cryoablation: “What We Do and Don’t Know”

Special Guests: Bernd Kasper, MD, PHD and Jean-Emmanuel Kurtz, MD, PHD

2024 Patient Education Webinar

“The Role of Surgery in FAP associated Desmoid Disease: From Prevention to Intestinal Transplant”

with David Liska, MD, MA, FACS, FASCRS

Recorded at the 2024 Int’l Desmoid Tumor Research Workshop

“Magnetic resonance image-guided high intensity focused ultrasound for patients with desmoid-type fibromatosis: the MAGNIFIED trial”

with Stefanie Hakkesteegt, MD, PhD candidate

Recorded at the 2024 Int’l Desmoid Tumor Research Workshop

“Trans-arterial Doxorubicin Eluting Embolotherapy for Desmoids: a prospective, multicenter study design”

with Eldad Elnekave, MD

Recorded at the 2024 Int’l Desmoid Tumor Research Workshop