Education, Research and Events

“We won’t stop until there is a CURE.”

with Jason Ortwerth, Desmoid Patient & DTRF Board Member

Desmoid Tumor Patient Panel on Lived Experience

“Treating Desmoid Tumors with Interventional Radiology: Histotripsy (High Intensity Focused Ultrasound or HiFU)/ Cryoablation/ Doxorubicin Eluting Embolization (DEE).”

with Eldad Elnekave, MD

“Latest Edition of the Global Management Consensus from The Desmoid Tumor Working Group.”

with Bernd Kasper, MD, PhD

“Introduction to desmoid tumors & Understanding the mechanisms of spontaneous tumor regression.”

with Candace L. Haddox, MD

“The Financial Burden of Desmoid Tumors in Adult Patients: Desmoid Tumor Research Foundation Natural History Study.”“Latest Edition of the Global Management Consensus from The Desmoid Tumor Working Group.”

with Shengfan (Sophia) Zhou, MS