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  • Golf for a Cure

    Join the Augdahl Family for a golf tournament in Zeeland, Michigan! Date: August 30, 2026 Time: 12:00PM registration with 1:00PM shotgun Cost: $125.00 per person Location: Crestview Golf Course - […]

  • Desmoid Defenders 5K Run/Walk

    Queeny Park Saint Louis, MO, United States

    Run for Awareness. Run for Research. Run for Hope. September is Desmoid Tumor Awareness Month, and the Desmoid Defenders 5K is an opportunity to bring our community together to support patients […]

  • 2026 DTRF “Together We Will” Weekend

    Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here! All Weekend events will […]

  • Swing for a Cure – St. Louis

    The Legends Country Club 625 The Legends Pkwy, Eureka, MO, United States

    The Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th for an 18 hole, four player scramble at the newly renovated Robert Trent Jones golf course at The Legends Country Club in Eureka, MO. Learn […]