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Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
The Desmoid Tumor Research Foundation
Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell
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DTRF Int’l Research Workshop (DTRF Together We Will Weekend event)
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesDesigned for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the […]
Featured
DTRF Together We Will Weekend
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesThis weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Patient Meeting (DTRF Together We Will Weekend event)
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesFounded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and […]
DTRF Community Networking Event (DTRF Together We Will Weekend event)
Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United StatesCommunity connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in […]
RFA 5K & Fun Fun
Fairmount Park 4231 Avenue of the Republic, Philadelphia, PA, United StatesThe RFA 5K & Fun Run, founded by desmoid tumor patient Sera Snyder in 2010, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against […]
Swing For A Cure – St. Louis
The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!
Faith Over Fear Fundraiser
West Catholic High School 801 Bristol Ave NW, Grand Rapids, MI, United StatesIf you are in the Grand Rapids area, come join Gabe and his local high school as they raise awareness and funds for the DTRF! Free Throw Contest @ Half-time. T-shirts will be available for purchase at the games. All proceeds from the event will go directly to the DTRF. If you can't attend this […]
DTRF Informational Zoom Webinar for Adolescents & Young Adults
Join the DTRF for the first night of the two-part special event: "Times Are A-Changin': Heading into Young Adulthood with a Desmoid Tumor." This event is exclusively designed for young adults with desmoid tumors (ages 18-39). Part One: Informational Zoom Webinar Have you been the youngest person in the oncology waiting room? Learn tips and […]
DTRF “Speed Desmoidian-ing” Virtual Networking Event for Adolescents & Young Adults
Join the DTRF for the second night of the two-part event: "Times Are A-Changin': Heading into Young Adulthood with a Desmoid Tumor." Tune in for a special "Speed Desmoidian-ing" virtual networking event just for young adults with desmoid tumors facilitated by two of their peers. Includes: 1-on-1 Breakout Rooms and Group Discussion to connect with […]
WMK Classic: Lacrosse Tournament Fundraiser
1st Annual WMK Classic (presented by WYL) Charity 3-on-3 Small Ball Lacrosse Tournament benefitting the DTRF in Winchester, Massachusetts. Contact Chris Froeb for more information: chrisfroeb@gmail.com
Athina’s Ride
Penticton B.C.Athina's Ride is a cycling event that starts with training rides in the spring and culminates on July 13/14th weekend. You can either complete the ride on your own, with family & friends or join our ride led by Athina Merckx on the Saturday July 13th in Penticton, British Columbia. Come join Athina and support […]
