In honor of Rare Disease Day this year, join us LIVE on Facebook on February 27th, at 6 PM ET for a conversation with desmoid tumor patient, Amy Beitz! You don’t want to miss Amy share her desmoid tumor story. To join the event and ask questions, visit our Facebook Live Event link in our feed the week of the event.

If you would like to share your desmoid tumor journey with us, please submit your story to be considered for a patient feature during this campaign: https://bit.ly/DTRF-submit-story

To make a significant impact on behalf of the patient community, we invite you to attend this Facebook Live event, share our social content, and spread the word that desmoid tumors are NOT benign.

Learn more about the World Health Organization’s (WHO) classification of desmoid tumors, which is listed under Table II: Fibroblastic/Myofibroblastic Tumours: https://pmc.ncbi.nlm.nih.gov/articles/PMC8167394