The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Impact of pain on physical and role functioning in adult patients with desmoid tumors treated with nirogacestat/Impact of nirogacestat on patient-reported outcomes in adults with desmoid tumor with a best overall response of stable disease: post hoc analysis from the DeFi study”

with Ravin Ratan, MD

Recorded at the 2024 DTRF Patient Meeting

“Active Surveillance: An accepted first-line treatment in most desmoid tumor cases”

with Chiara Colombo, MD

Recorded at the 2024 DTRF Patient Meeting

“An Update on the DTRF Natural History Study – September 2024”

with Kelly Mercier, PhD

Recorded at the 2024 DTRF Patient Meeting

“Learning in the basics: Desmoid Tumors 101”

with Thierry Alcindor, MD, MSc

Recorded at the 2024 DTRF Patient Meeting

“Reproductive/ Fertility Considerations: Important things to know”

with Laurie J. McKenzie, MD

Recorded at the 2024 DTRF Patient Meeting

“One Caregiver’s Journey”

Special Guest: Amanda MacKinnon, Caregiver of a Desmoid Tumor Patient

2024 Desmoid Tumor Awareness Month Facebook Live