Living with Desmoid Tumors: A DTRF Education Experience is a one day, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands their lived experiences.

What can you expect?

This event is designed with YOU in mind. Every session of this special, one day event is purposefully curated to inform, empower, and connect desmoid tumor patients and caregivers. Expert clinicians provide insight and guidance in an accessible, patient-centered way that supports real-life decision making.

Why should you attend?

This event is designed for every stage of the desmoid journey, from newly diagnosed patients to long term survivors, offering a shared space for patients and caregivers to learn together.

✨ You’ll hear presentations from clinical experts that will translate complex research and practice into understandable, actionable insights.

✨ Knowledge is power. Staying educated helps reduce fear and uncertainty after diagnosis, during treatment, and post-treatment management/monitoring/surveillance, etc.

✨ Take time to connect with patients, caregivers, and clinicians in a comforting, non-clinical environment.

✨ Learn more about how you can get involved in ongoing DTRF programs and fundraising opportunities.

How do I register for the upcoming event in Ohio?

Event registration, location and more details are coming soon!

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